“Nothing can prepare you for the news that your child is near end of life, but having someone other than your close one to turn to, is so comforting and some days when you feel that you don't want to go on yourself, having that reassuring person beside you, really, really helps."

Jackie (mum) 

The role of the Paediatric Palliative Clinical Nurse Specialist is critical in supporting patients and families of children with palliative care needs both in hospital and at home.

This will be key in delivering symptom management, holistic and co-ordinating care at end of life, including facilitation of rapid transfer to the patients preferred location where possible.

The Paediatric Palliative Clinical Nurse Specialist will enhance the patient and family experience of those with life limiting conditions in providing more access to support from the Paediatric Palliative Care Team.